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Stroke Support Data

Which data sources and/or registries are available for tracking and monitoring stroke incidence rates and support services?

The choice of stroke registries used for collecting and analysing stroke care data matters because it can affect the accuracy and completeness of the data, which in turn can impact the quality of care and outcomes for stroke patients. It’s important to use comprehensive, accurate, and widely-used registries to ensure that the data collected can be used to improve stroke care and outcomes.

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2021

National registry or National Health Surveillance Estimate or other RES-Q or SITS Reimbursement registry Individual contact to sites Regional registry Data not available No data provided

Albania

Armenia

  • Prof Nune Yeghiazaryan
  • Head of Neurology Department, Erebouni Medical Center
  • ynune@yahoo.com

Austria

  • Dr Sigrid Schwarz
  • Dr Stefan Kiechl

Azerbaijan

  • Dr Nara Hesen

Belarus

Bulgaria

  • Dr Dimitar Taskov
  • Dorina Dobreva
  • President of the Association for Stroke and Aphasia Bulgaria
  • dobreva@stroke.bg
  • Prof Dimitar Maslarov
  • Chairman Neurology Clinic, Medical University Sofia
  • maslarovdb@abv.bg

Belgium

  • Dr Laetitia Yperzeele
  • Dr François Delvoye

Bosnia and Herzegovina

Catalonia

Croatia

Cyprus

  • Dr Eva Pettemeridou
  • Cyprus Stroke Association

Czech Republic

Denmark

England

  • Dr Rubina Ahmed
  • Sarah Belson

Estonia

  • Triinu Kurvits
  • Prof Janika Kõrv
  • Dept. of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu Professor in Clinical Neurology, Dept. of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu Neurologist at the Dept. of Neurology and Neurosurgery, Tartu University Hospital
  • janika.korv@kliinikum.ee
  • Dr Riina Vibo
  • Reaseacher at the Dept. of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu Neurologist at the Dept. of Neurology and Neurosurgery, Tartu University Hospital
  • Riina.Vibo@kliinikum.ee

Finland

  • Dr Susanna Roine
  • Dr Pauli Ylikotila
  • Dr Daniel Strbian
  • Neurologist, Chief Doctor, Helsinki University Central Hospital
  • Daniel.Strbian@hus.fi

France

  • Prof Sonia Alamowitch
  • Prof Charlotte Cordonnier

Germany

  • Prof Tobias Neumann-Haefelin

Georgia

Greece

  • Dr Hariklia Proios
  • Associate Professor of Neurocognitive Disorders and Rehabilitation, Department of Educational & Social Policy, University of Macedonia, Thessaloniki
  • hproios@gmail.com
  • Prof Georgios Tsivgoulis
  • Professor & Chairman, Second Department of Neurology, National & Kapodistrian University of Athens, Athens
  • tsivgoulisgiorg@yahoo.gr
  • Prof Haralampos Milionis
  • Professor & Chairman, Second Department of Internal Medicine, University of Ioannina, Ioannina
  • hmilioni@uoi.gr

Hungary

Iceland

Ireland

  • Frances Horgan
  • Molly Manning

Israel

  • Dr Rani Barnea

Italy

Kazakhstan

  • Dr Zauresh Akhmetzhanova
  • Chief specialist of "Republican coordination centre for stroke problems
  • zauresa@yandex.ru

Kosovo

Kyrgyzstan

  • Dr Djamal Turgumbaev
  • Chief of Neurology 3 Department of National Hospital under Ministry of Health
  • t.jamal@mail.ru
  • Dr Elmira Mamytova
  • Head of Neurology and Medical genetic Department, Kyrgyz State Medical Academy
  • elmiramamytova@yahoo.com
  • Dr Kunduz Karbozova
  • Assistant on Neurology and Medical genetic Department, Kyrgyz State Medical Academy
  • Karbozova89@mail.ru

Latvia

Lithuania

  • Prof Dalius Jatuzis
  • President of Lithuanian Stroke Association Professor in Neurology at Vilnius University Faculty of Medicine
  • dalius.jatuzis@santa.lt
  • Dr Aleksandras Vilionskis
  • Member of the Board of Lithuanian Stroke Association Associate Professor in Neurology at Vilnius University Faculty of Medicine
  • aleksandras.vilionskis@rvul.lt

Luxembourg

North Macedonia

  • Gordana Dimeska
  • Ms Katina Aleksovska
  • Neurology resident, University Clinic of Neurology, Skopje, North Macedonia, Board member of the Macedonian Stroke Association
  • katinaaleksovska@gmail.com
  • Dr Elena Lichkova
  • Neurologist, Clinical hospital, Neurology department, Shtip, North Macedonia, Board member of the Macedonian Stroke Association
  • eedrovska@yahoo.com
  • Dr Maja Bozinovska Smicheska
  • Neurologist, Special hospital "St. Erasmo", Ohrid, North Macedonia, President of the Macedonian organization for a fight against stroke (SSO) and Board member of the Macedonian Stroke Association (President)
  • majabozoh35@gmail.com
  • Prof Anita Arsovska
  • Neurologist, University Clinic of Neurology, University "Ss. Cyril and Methodius"-Faculty of Medicine, Skopje, North Macedonia, President of the Macedonian Stroke Association
  • anita70mk@yahoo.com

Northern Ireland

  • Dr Rubina Ahmed
  • Sarah Belson

Malta

Moldova

Montenegro

Netherlands

  • Dr Vincent Kwa
  • Dutch Association of Neurology, Working Group Neurovascular diseases
  • I.H.Kwa@olvg.nl

Norway

Poland

  • Dr Adam Kobayashi
  • Prof Anna Czlonkowska
  • President of the Section for Cerebrovascular Diseases and Board of Directors of the Polish Neurological Society
  • czlonkow@ipin.edu.pl

Portugal

  • Dr Gustavo Santo
  • Sociedade Portuguesa do AVC - National Stroke Association
  • Dr Elsa Azevedo
  • Programa Nacional para as Doenças Cérebro-Cardiovasculares - Cerebro and Cardiovascular Diseases National Program

Romania

  • Dr Cristina Tiu
  • Head of Stroke Unit in the University Hospital Bucharest Romanian Society of Neurology
  • cristinatiu@yahoo.com

Russia

  • Prof Alla Guekht
  • Moscow Research and Clinical Center for Neuropsychiatry
  • guekht@gmail.com

Scotland

  • Dr Rubina Ahmed
  • Sarah Belson

Serbia

  • Dr Željko Živanović
  • Faculty of Medicine University in Novi Sad Head of the Clinic of Neurology, Clinical Centre of Vojvodina
  • drzzivanovic79@gmail.com

Slovakia

  • Prof Zuzana Gdovinova
  • Head of Department, Department of Neurology, Faculty of Medicine, P.J. Safarik University Košice
  • z.gdovin@gmail.com

Slovenia

  • Dr Zvan Bojana
  • President of the National Stroke Society at the Slovenian Medical Association
  • bojana.zvan@kclj.si

Spain

  • Dr Maria del Mar Freijo

Sweden

  • Prof Mia von Euler

Switzerland

Turkey

  • Prof Mehmet Topcuoglu
  • Professor at Hacettepe University, Ankara President, Turkish Cerebrovascular Diseases Society
  • matopcuoglu@yahoo.com

Ukraine

  • Dr Dmytro Lebedynets
  • Prof Maria Gulyayeva
  • Prof Yuriy Flomin
  • Universal Clinic ‘Oberig’, Head of the Stroke and Neurorehabilitation Unit
  • flomin.yuriy@gmail.com

United Kingdom

Wales

  • Dr Rubina Ahmed
  • Sarah Belson

Spain

Sorry, no Coordinators are available in this Country at the moment...

2020

National registry or National Health Surveillance Estimate or other RES-Q or SITS Reimbursement registry Individual contact to sites Regional registry Data not available No data provided

Albania

Armenia

  • Prof Nune Yeghiazaryan
  • Head of Neurology Department, Erebouni Medical Center
  • ynune@yahoo.com

Austria

  • Dr Sigrid Schwarz
  • Dr Stefan Kiechl

Azerbaijan

  • Dr Nara Hesen

Belarus

Bulgaria

  • Dr Dimitar Taskov
  • Dorina Dobreva
  • President of the Association for Stroke and Aphasia Bulgaria
  • dobreva@stroke.bg
  • Prof Dimitar Maslarov
  • Chairman Neurology Clinic, Medical University Sofia
  • maslarovdb@abv.bg

Belgium

  • Dr Laetitia Yperzeele
  • Dr François Delvoye

Bosnia and Herzegovina

Catalonia

Croatia

Cyprus

  • Dr Eva Pettemeridou
  • Cyprus Stroke Association

Czech Republic

Denmark

England

  • Dr Rubina Ahmed
  • Sarah Belson

Estonia

  • Triinu Kurvits
  • Prof Janika Kõrv
  • Dept. of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu Professor in Clinical Neurology, Dept. of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu Neurologist at the Dept. of Neurology and Neurosurgery, Tartu University Hospital
  • janika.korv@kliinikum.ee
  • Dr Riina Vibo
  • Reaseacher at the Dept. of Neurology and Neurosurgery, Institute of Clinical Medicine, University of Tartu Neurologist at the Dept. of Neurology and Neurosurgery, Tartu University Hospital
  • Riina.Vibo@kliinikum.ee

Finland

  • Dr Susanna Roine
  • Dr Pauli Ylikotila
  • Dr Daniel Strbian
  • Neurologist, Chief Doctor, Helsinki University Central Hospital
  • Daniel.Strbian@hus.fi

France

  • Prof Sonia Alamowitch
  • Prof Charlotte Cordonnier

Germany

  • Prof Tobias Neumann-Haefelin

Georgia

Greece

  • Dr Hariklia Proios
  • Associate Professor of Neurocognitive Disorders and Rehabilitation, Department of Educational & Social Policy, University of Macedonia, Thessaloniki
  • hproios@gmail.com
  • Prof Georgios Tsivgoulis
  • Professor & Chairman, Second Department of Neurology, National & Kapodistrian University of Athens, Athens
  • tsivgoulisgiorg@yahoo.gr
  • Prof Haralampos Milionis
  • Professor & Chairman, Second Department of Internal Medicine, University of Ioannina, Ioannina
  • hmilioni@uoi.gr

Hungary

Iceland

Ireland

  • Frances Horgan
  • Molly Manning

Israel

  • Dr Rani Barnea

Italy

Kazakhstan

  • Dr Zauresh Akhmetzhanova
  • Chief specialist of "Republican coordination centre for stroke problems
  • zauresa@yandex.ru

Kosovo

Kyrgyzstan

  • Dr Djamal Turgumbaev
  • Chief of Neurology 3 Department of National Hospital under Ministry of Health
  • t.jamal@mail.ru
  • Dr Elmira Mamytova
  • Head of Neurology and Medical genetic Department, Kyrgyz State Medical Academy
  • elmiramamytova@yahoo.com
  • Dr Kunduz Karbozova
  • Assistant on Neurology and Medical genetic Department, Kyrgyz State Medical Academy
  • Karbozova89@mail.ru

Latvia

Lithuania

  • Prof Dalius Jatuzis
  • President of Lithuanian Stroke Association Professor in Neurology at Vilnius University Faculty of Medicine
  • dalius.jatuzis@santa.lt
  • Dr Aleksandras Vilionskis
  • Member of the Board of Lithuanian Stroke Association Associate Professor in Neurology at Vilnius University Faculty of Medicine
  • aleksandras.vilionskis@rvul.lt

Luxembourg

North Macedonia

  • Gordana Dimeska
  • Ms Katina Aleksovska
  • Neurology resident, University Clinic of Neurology, Skopje, North Macedonia, Board member of the Macedonian Stroke Association
  • katinaaleksovska@gmail.com
  • Dr Elena Lichkova
  • Neurologist, Clinical hospital, Neurology department, Shtip, North Macedonia, Board member of the Macedonian Stroke Association
  • eedrovska@yahoo.com
  • Dr Maja Bozinovska Smicheska
  • Neurologist, Special hospital "St. Erasmo", Ohrid, North Macedonia, President of the Macedonian organization for a fight against stroke (SSO) and Board member of the Macedonian Stroke Association (President)
  • majabozoh35@gmail.com
  • Prof Anita Arsovska
  • Neurologist, University Clinic of Neurology, University "Ss. Cyril and Methodius"-Faculty of Medicine, Skopje, North Macedonia, President of the Macedonian Stroke Association
  • anita70mk@yahoo.com

Northern Ireland

  • Dr Rubina Ahmed
  • Sarah Belson

Malta

Moldova

Montenegro

Netherlands

  • Dr Vincent Kwa
  • Dutch Association of Neurology, Working Group Neurovascular diseases
  • I.H.Kwa@olvg.nl

Norway

Poland

  • Dr Adam Kobayashi
  • Prof Anna Czlonkowska
  • President of the Section for Cerebrovascular Diseases and Board of Directors of the Polish Neurological Society
  • czlonkow@ipin.edu.pl

Portugal

  • Dr Gustavo Santo
  • Sociedade Portuguesa do AVC - National Stroke Association
  • Dr Elsa Azevedo
  • Programa Nacional para as Doenças Cérebro-Cardiovasculares - Cerebro and Cardiovascular Diseases National Program

Romania

  • Dr Cristina Tiu
  • Head of Stroke Unit in the University Hospital Bucharest Romanian Society of Neurology
  • cristinatiu@yahoo.com

Russia

  • Prof Alla Guekht
  • Moscow Research and Clinical Center for Neuropsychiatry
  • guekht@gmail.com

Scotland

  • Dr Rubina Ahmed
  • Sarah Belson

Serbia

  • Dr Željko Živanović
  • Faculty of Medicine University in Novi Sad Head of the Clinic of Neurology, Clinical Centre of Vojvodina
  • drzzivanovic79@gmail.com

Slovakia

  • Prof Zuzana Gdovinova
  • Head of Department, Department of Neurology, Faculty of Medicine, P.J. Safarik University Košice
  • z.gdovin@gmail.com

Slovenia

  • Dr Zvan Bojana
  • President of the National Stroke Society at the Slovenian Medical Association
  • bojana.zvan@kclj.si

Spain

  • Dr Maria del Mar Freijo

Sweden

  • Prof Mia von Euler

Switzerland

Turkey

  • Prof Mehmet Topcuoglu
  • Professor at Hacettepe University, Ankara President, Turkish Cerebrovascular Diseases Society
  • matopcuoglu@yahoo.com

Ukraine

  • Dr Dmytro Lebedynets
  • Prof Maria Gulyayeva
  • Prof Yuriy Flomin
  • Universal Clinic ‘Oberig’, Head of the Stroke and Neurorehabilitation Unit
  • flomin.yuriy@gmail.com

United Kingdom

Wales

  • Dr Rubina Ahmed
  • Sarah Belson

Spain

Sorry, no Coordinators are available in this Country at the moment...