How it works

The following tasks fall into the responsibility of the National SAP-E Coordinator:

• Stakeholder analysis
  • Each country has to conduct a stakeholder analysis in order to identify the key people and institutions that have an influence on any implementation task on a national level
• Form a working group/committee – the national SAP-E network – through the stakeholder analysis
  • All relevant parties have to be involved and all regions covered. Practical tasks, advocacy (health care professionals can recommend, but only patients demand) and synergies with existing structures and networks are considered
• Gathering data/lived experience and its analysis to support the demand for improvement
  • An effort is specifically needed from the SSOs, as they have access to the patient population
• Conducting a national stroke plan and engagement in meeting the SAP-E targets
  • This national stroke plan should work towards a lift of the entire area: argue/advocate for this
• Communicate to public, media and policy makers
  • Share data from lived experience gathering as well as data from mapping of stroke in Europe and any other relevant data
  • Promote the SAP-E to the national public, media and policy makers
  • The SAP-E Steering Committee communicates on a European level to support this effort
• Act as point of communication for the SAP-E Steering Committee
  • Ensure timely responding and delegation
  • Be able to provide information on the status quo of the national SAP-E implementation efforts at any time
• Give advice on the best approach to communicate with national policy and decision makers
  • An approach that involves both representatives from health care professions as well as patient representatives is preferred
• Communicate with the Ministry of Health to gain support for the SAP-E implementation including an official signing of the Declaration
• Development of a national stroke plan
  • Contribute to the development of a national stroke plan covering the entire chain of care
• Upload national summary data
  • A minimum data set of basic variables and data on Key Performance Indicators has to be uploaded annually to the secure SAP-E data platform
  • As the workload of obtaining the data varies between countries, SAP-E will assist on the request of the national coordinator
• Chair the national auditing committee to ensure annual national auditing and benchmarking
  • This national auditing committee involves the national SAP-E representatives including the patient representative and further national experts to give a balanced representation of the national stroke community; in most countries, the committee includes 8 – 10 people. The committee meets at least annually
  • The committee reports to the SAP-E Steering Committee as well as nationally to the stakeholders involved
  • Targets of meeting KPIs are defined nationally and reviewed annually. The targets should be ambitious but realistic on a year to year basis and it is encouraged to identify focus areas to support prioritisation
  • On an annual basis, the national data is audited and commented on by the committee: e.g. areas needing focus and areas with a good status. Comments are posted with the data on the SAP-E platform